![]() ![]() “Every student with epilepsy deserves to feel safe, and every parent should have peace of mind that their child will be cared for at school in the event of a seizure,” said Bernice Martin Lee, president and chief executive officer, Epilepsy Foundation. To date, almost half of the country has passed some form of Seizure Safe Schools legislation. The model legislation has five components the number of components included in the bill varies by state. Seizure Safe Schools is a nationwide initiative led by family advocates and organizational partners to ensure that schools are well-equipped with the tools necessary to provide a safe and supportive environment for students living with epilepsy and seizure disorders. It also gives parents a sense of comfort knowing their child is with someone who is trained to assist them, which was a fear we had sending Sarah to school.” It is our family’s hope that the passage of Sarah’s Law for seizure safe schools will give school personnel a better understanding of epilepsy, and help children maintain their dignity after a seizure. “Sarah was such an inspiration to us all. “No parent should ever have to lose a child to epilepsy this law is truly life changing for the children of Ohio,” said Sharon DeVore, Sarah’s mom. It also requires at least one employee at each school building to be trained in the implementation of seizure action plans every two years. It also requires schools to create an individualized seizure action plan, in collaboration with parents/guardians and a healthcare professional, for each student with a diagnosed seizure disorder. Sarah’s Law requires that all school personnel - including nurses and staff, in public and chartered schools - receive seizure first aid training. There are 470,000 children and teens living with epilepsy in the U.S., and of those, 16,900 are in Ohio. By enacting “Sarah’s Law” as part of the operating budget, teachers will have individualized information on students who have conditions that lead to seizures and how they can best be helped until medical professionals arrive,” said Governor Mike DeWine. “Seconds count and information is critical when someone is in medical distress. Sarah’s Law helps school personnel manage students living with epilepsy, or a seizure disorder, and ensures that a Seizure Action Plan is in place. The law was named after Sarah Linardos (Springfield, Ohio) who struggled with seizures since the age of 15, and at 26, passed away from sudden unexpected death in epilepsy (SUDEP). Nearly Half the Country Has Now Passed Seizure Safe Schools Legislation Providing Safeguards for Students with Epilepsy or a Seizure DisorderīOWIE, Md., JEpilepsy Foundation and Epilepsy Alliance Ohio announced today that House Bill 33 (Sarah’s Law) was recently signed into law by Ohio Governor Mike DeWine, bringing Seizure Safe Schools legislation to nearly half the states in the nation. ![]()
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